Taylor C


	Taylor C ~ ‘Pokemon’

DATE OF BIRTH: May 14th, 1993

ILLNESS: Batten Disease.


		Taylor’s Quilt Stitchers: Australian Annette~Taree, Cindy~Brisbane, Diane~Maryborough, Diane~Mildura, Elaine~Raby, Karen~Canberra, Kirsty~Snowtown, Rae-Maree~CambridgePark, Tamara~Canberra. International Christina~USA, Cristina~Italy, Debi~USA, Iara~Brazil, Jeanie~USA, Julia~USA, Kathy~NewZealand, Sue~Canada.

BIOGRAPHY

When Taylor was born he was a normal healthy baby. As he was growing he was quite advanced for his age and seemed to do lots of things at at an early age eg. rode a bike at 2 years without training wheels and a mini motor bike at 3 years plus numerous other things. After he started kinder we noticed his eyesight starting to deteriorate and so began the rounds of specialists.

By the time he started school he was almost totally blind, he also had a few behavioral issues but at the time we thought it was his frustration at losing his vision.

He and his mum moved to Melbourne in 2006 so that Taylor could attend the Vision Australia school full time. He had been having a few seizures before the move but no one suspected or had even heard of the disease. He was already having tests to determine the cause of the seizures after having a seizure at the school which he used to go to part time before the move. The specialist doing all the tests had seen one other case of Batten Disease. He is now showing a few more signs of the disease and his seizures are becoming more frequent. Since each child is different no one knows how quickly this disease in Taylor will advance.

Written by Taylor’s Grandmother.