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Amanda S sml

Amanda S ~ ‘Teddy Bears

Sharon ~ Casula, New South Wales

DATE OF BIRTH: January 7th, 2003

 ILLNESS: Battens Disease.  

Amanda's Quilt

Amanda’s Quilt Stitchers:

Australian

Anne~Lismore, Caroline~Melton, Di~Snowtown, Jan~Adelaide, Janet~Toowoomba, Julie~Beerwah, Kirsty~Snowtown,

Rae-Maree~CambridgePark, Tamara~Canberra, Tania~Werribee.

International

 Barb~USA, Cristina~Italy, Debi~USA, Jeri~USA.

Label

Sharon~Casula

Quilt Assembled & Quilted By

The Mayteam~Caloundra

 

BIOGRAPHY

Amanda was born a normal, healthy child in 2003. She showed no sign of the disease. When her sister Brodie was diagnosed in 2004 we had the test run on Amanda to see if she had the same disease. The test results came back positive. Amanda had Late Infantile Battens Disease. Amanda first showed signs in 2006 and has now lost the ability to walk and talk. She has also had an NG tube placed to help her gain weight.

Both my girls are very special to us all and we love every moment that we have with them.

Debbie ~ Amanda & Brodie’s mum.